tag:blogger.com,1999:blog-5680783898929117118.post5875766417670750913..comments2023-10-03T21:08:50.028-05:00Comments on Miss Mira: Finally.......An Update!Unknownnoreply@blogger.comBlogger5125tag:blogger.com,1999:blog-5680783898929117118.post-75960411790745344342010-03-16T09:45:25.000-05:002010-03-16T09:45:25.000-05:00I am finally catching up on blogs. I am happy to h...I am finally catching up on blogs. I am happy to hear all this info but now I am still out of date since it is now March 16! I am praying for you all. Love the pictures.<br />KyranThe_Wilsonshttps://www.blogger.com/profile/00356711857249996226noreply@blogger.comtag:blogger.com,1999:blog-5680783898929117118.post-43217114465939993552010-03-04T00:41:42.802-06:002010-03-04T00:41:42.802-06:00I came here in a crazy round a bout way and love y...I came here in a crazy round a bout way and love your blog and I am usually just a quiet blog lurker but I had to say your daughter Mira is absolutely gorgeous, absolutely.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5680783898929117118.post-50787803574057596162010-02-04T07:32:34.279-06:002010-02-04T07:32:34.279-06:00Hey Marc- it's great to see an update. I am ha...Hey Marc- it's great to see an update. I am happy to hear Mira's finding at least a little success with the clorazepate.<br /><br />Kids all look great! Everyone is getting so big.JSmith5780https://www.blogger.com/profile/16954759123115546248noreply@blogger.comtag:blogger.com,1999:blog-5680783898929117118.post-57290069843584021082010-01-29T13:01:49.002-06:002010-01-29T13:01:49.002-06:00I'm curious about the details of Mira's di...I'm curious about the details of Mira's diet. Ansel eats only Pediasure Enteral (less sugar than regular) by bottle, but we keep wondering if there's a more naturally nutritious way to get his calories and such. What kind of protein powder, supplements? Did your feeding team help come up with it? <br /><br />The drug/functioning balance is absolutely what it's all about. You guys are brave to keep trying. At the moment we seem to have found a "normal", so it makes us nervous to try new ones that may turn whatever universe in which this is normal upside-down. <br /><br />Beautiful, beautiful addition. Still envious of the extra space.Carolinahttp://web.me.com/anselsdaybreaknoreply@blogger.comtag:blogger.com,1999:blog-5680783898929117118.post-53556983677065059612010-01-25T01:34:17.387-06:002010-01-25T01:34:17.387-06:00Hi Marc,
So glad to have an update-though of cours...Hi Marc,<br />So glad to have an update-though of course I keep up with you on the IS Yahoo board. Love the pictures! <br />It's so true about the genetics test-Kira's most recent mircoarray detected additional material on her 20th chromosome, though no one can tell us what, if anything, that means yet. <br />Kira is only 2, but from your blog and videos I think she has a lot in common with Mira, besides their names being similar. Thanks for posting your experiences. I feel like it gives us a view into what we need to expect from Kira's future a couple years from now. Sending healthy thoughts your way,<br />ChristinaChristinanoreply@blogger.com