Mira's New Bed

After months of anticipation, we are excited to announce that Mira's bed is finally here. The mobility supply company came this afternoon and set it up in about an hour. We did have to play some musical furniture prior to it being delivered. First, we had to get the crib out of Mira's room and into Eli's room (where Jonah will start taking naps and eventually start sleeping) and took all the miscellaneous pieces of furniture out, just to get the bed in. Frankly, we had no idea it was going to be so tall. We did take some initial measurements when we ordered it, but the bed pretty much spans from door to window (see pictures below) and comes within inches of the ceiling fan. It's tight, but it works just fine. Prairie Village houses are not known for their size - the bedrooms are really small to begin with and the bed makes it look even smaller, but who cares.

Needless to say, we love it and Mira loves it. No more banging her head into the crib, kicking the rails out, and the best part of all, we can change her in the bed. We currently have a baby changing table that we use to change her on, which works great for Jonah, but not a 3 foot tall, 35 pound wiggly girl. Now we can just swing the side rail down and change her right on the bed.

The bed basically has a very durable mesh fabric on all four sides, along with tilt-up side rails for protection against the wall. The mesh sides all have zippers, so the entire canopy becomes zipped tight and will keep her from falling out. The mesh is non-abrasive and gives just enough to cushion Mira when she falls, leans, or launches herself into it. The canopy posts and side rails are all heavily padded, so there is virtually no way of her knocking her head against anything. It is designed to keep her safe, which it will. The mattress is close to a twin size, which is plenty of room for growth and designed so that she will use it for years to come.

Eli's face sort of summarizes our eventful day - we are very excited to have the bed. Mira did a lot of jumping around and exploring for about a half hour once it was set up, eventually wearing herself out. We knew she was officially spent when she propped her feet up on the side rail and called it quits.

We wanted to personally thank the IDC, the Love Fund, and Dad and Dottie for helping us pay for it. We are eternally grateful - thank you!

Bedtime is Almost Here

We are so excited that Mira's bed is finally coming this week! A technician is supposed to come on Thursday afternoon to deliver it and set it up. It could not be any sooner. Jonah will be graduating from the bassinet to Mira's crib. Fortunately, the crib is still in one piece, needing only minor periodic repairs from Mira kicking out the side rails. I have secretly nicknamed her feet 'Tiny Daggers' (named after the not-so-famous song by INXS - I am always very random), kicking and destroying everything within range. It's hard to believe that Mira has been using the crib for the past 3 1/2 years. We have some furniture rearranging to do and we are crossing our fingers that the new bed doesn't take up the entire room.

Now that it is March, I think the sickness is finally subsiding and everyone is feeling better. Jonah still has a slight cough but nearly there, Eli is back to his normal rambunctious self, and Sarah's flu symptoms have drifted away. Mira continues to have some good days and not so good ones - I think she just needs to get out of the house more often, which is difficult when there is snow on the ground and it's 15 degrees. Today is the start of a warming trend, so hopefully we all can get out and get some fresh air.

I spoke with neurology in regards to Mira's CDKL5 testing and they said it could be another 3-4 weeks. Some testing takes longer than others I suppose.

I will post bed pictures Thursday hopefully!