Saturday, July 15, 2017

New Glasses

Mira had an ophthalmology appointment a while back and we just now got her into the eye doctor a few weeks ago to get her fitted for new frames, based on her new prescription. Her vision had only changed slightly over the past 12-18 months, so it wasn't super critical that she immediately get her updated lenses. Her vision is still very, very poor - she has significant myopia, in the +10.50 range in both eyes, thus her lenses are fairly thick around the edges. Frame selection is always fairly important, in order to try and hide the thickness of the lenses. We went with a slightly smaller, but rounder frame, that seemed to stay on the bridge of her nose better than the last pair. Mira did a fair amount of scanning for the first 20 minutes she had the new frames on, but after that, she was back to her usual focus. She kept giving me these skeptical looks when we first arrived back from the eyeglass center - thus the funny looks in the pics above.

Thursday, July 6, 2017

Back to Baseline

Mira was back to her usual self by this morning. It was easy to tell that she was doing better - her hands and feet weren't clammy, she showed some brief interest in her toy, but mainly we could tell based on her appetite. She drank 3 bottles this morning in succession. She had a fairly smooth rest of the day and her appetite continued, until dinner time, where she was a little irritable, probably because she was still hungry after a few bottles - making up for lost time from yesterday, where she only drank a single bottle all day long, because of the dystonia.

Wednesday, July 5, 2017

More Dystonia

Mira had a rough day today. This morning she wouldn't drink anything and seemed a little off at breakfast, which is usually a sign that something is brewing. Sure enough, by mid-morning, she was in full-dystonia mode, complete with clammy hands, sweating, rigid legs, and an altered state overall. Her disposition didn't change much over the course of the day and we could not get her to drink anything the entire afternoon. Finally, the dystonia seemed to relent about bedtime and she managed to drink a bottle, albeit very, very slowly, right before she went to bed. She was very twitchy all through this, similar to what she was dealing with just a few weeks ago, minus the tonic-clonics. Maybe it's just my imagination, but these episodes are becoming increasingly common with her.