Saturday, September 8, 2007

Slowly getting there.....

We are still tweaking Mira's MAD (Modified Atkins Diet) by adding, subtracting, and calculating ingredients to raise her ketones, with the help of her dietitian. Her labs came back from last week and we had mixed results.

The good news is that her cholesterol and her lipid levels came down, not to within a normal range, but they are certainly lower, which is great. Also, her alkaline phosphatase level is still normal, leading us to believe that her off-the-chart lab from early August was a fluke.

The bad news is that her beta-hydroxybutyrate level (measurement of ketosis in a sense) is still low, meaning she isn't burning enough ketones to put her into adequate ketosis. Therefore, our dietitian recommended adding a certain percentage of MCT oil to her diet. MCT can be hard on the stomach, so we will go slowly with it.

In the meantime, we started weaning Lamictal, and she should be off of it completely in about two weeks. We haven't noticed any difference yet, but it is early in the game. Five out of the last six days, she has only had one seizure per day. This is promising news so far with the diet, considering she was having 5 or 6 a day a month ago.

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