Things have been moving right along over the past week or so. Mira has gotten past the hump on the Lamictal, hitting her tenth week. Last Wednesday she went from 20mg daily, to 30mg this week, then to 50mg this Wednesday, for two weeks. She then finally reaches a therapeutic dosage at 75mg, which is where she will stay, if all goes well. She has been tolerating it well so far. We have been seeing some improvement in terms of her seizures - we still see the same frequency, although they they are not nearly as intense as before. Her breathing has not been nearly as labored during and after a seizure. Any improvement is good.
We are still moving through with additional testing on Angelman's, only it is slow going in discussing it with neurology. We plan to talk this week on what to do next.
On a side note, Sarah and I celebrated our 7th wedding anniversary on Saturday, gorging on delicacies that the sea has to offer - mussels, monk fish, and scallops, compliments of Le Fou Frog. We were even able to sneak in a movie afterwards and saw 'Once', which I highly recommend.
1 comment:
My name is Denise Simon and i would like to show you my personal experience with Lamictal.
I am 57 years old. Have been on Lamictal for 24 weeks now. Lamictal has worked well with no side effects other than the sleep problesm. My problems with other meds included constipation and depression. Lamictal also relieves my anger bouts...and settles me down which probably helps with seizure control.
I have experienced some of these side effects-
Following conversion from tegretol and Zonegran, I began on 400 mg Lamictal. Bad dreams followed with sleep talking and thrashing during dreams. This turned into more vivid short dreams in which I could not discern dreams from reality. I have contacted my Dr asking permission to take the meds earlier and he concurred to try them 4 hrs earlier. HE is leaning toward changing the meds. After laying out a lot of $ for a 3 month supply, I am reluctant to change meds as I am tight on $....
I hope this information will be useful to others,
Denise Simon
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