Mira finished off 2018 with some heavy seizure activity - one big tonic-clonic, followed by some mild dystonia for the rest of the day, which slowly started to dissipate by early evening, so much so that Sarah, Jonah, Mira and I managed to go out for some Chinese for dinner, which was nice to be able to get out of the house. The restaurant was fairly empty when we first arrived, but by the time we left, it was pretty packed. Considering it was New Years and the fact that we were getting four seasons in one day yesterday afternoon (rain, which turned to snow, yet never cold enough at the time to stick or accumulate) which caused most people coming into the restaurant to getting carryout - I think the weather kept a lot of people indoors, as the temperature had dropped 10 degrees by the time we were headed home. Mira was very quiet throughout dinner, still slowly recovering from the effects of some mild dystonia. She showed a little energy before we left out the door, perking up a bit and kicking her legs. She had a decent appetite before bed and enough energy to have a few bottles.
This morning she is having some strong myoclonics, which is a fairly typical morning for her. The dystonia has subsided for the most part, although in its place, are a lot of intense upper limb jerks that are keeping her from organizing enough to drink anything. We will wait it out for an hour to it to subside and try again. After nearly two solid weeks off of work, I am going to have to get on a regular sleep pattern somehow by tomorrow morning. Wish me luck.
I hope you all had a safe New Years Eve!
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