Sunday, January 6, 2019

Unhappy Wail-a-Thon: The Sequel

Mira was completely content all day today, until everything exploded about mid-afternoon. We ran a few errands right around lunch time, with Mira kicking her feet and ready to move at all times, our fingers crossed that we turned a corner after a dismal day yesterday. She had been getting very twitchy and was having a ton of strong myoclonics by the time we got back from errands, so I have no doubt her change in demeanor was neurological in nature.

Shortly afterward, she went into a repeat performance by getting extremely irritable around 3:30pm, which I temporarily remedied by walking her around the house (the weather was not as pleasant as yesterday - very windy, occasional rain, and 15 degrees colder by this time) with her playing with her toy while we walked, for a solid 90 minutes, without stopping. She must have had 2 or 3 dozen mild myoclonics while we were walking, but consistently played with her toy the entire time. The picture below is her face after we finally stopped walking.

Right after I took this, she started up again by voicing her displeasure of bath time, by wailing at the top of her lungs for 45 minutes. Her wailing echoed off of the tile in the shower walls, which literally made my ears ring afterward. Even after we were done with her bath, she continued to scream in her bed for another hour, until we gave her Valium to settle her down. She was having serious difficulty decompressing from whatever cycle she was in. We have only had to use Valium maybe 2-3 times in the last year or so and today was one of those days.


This has been one of the most exhausting 'breaks' we have had in years it feels like, and perhaps it is just my feeling of sprinting toward the finish line of this current school-less marathon, trying not to collapse or vomit before I hit the tape. The kids have been out of school for a over two weeks and it feels like it has been an entire summer. They are back tomorrow and it couldn't be soon enough - we all need to get back in a rhythm. Sarah and I could really use a vacation from our 'vacation'.

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