Sunday, June 29, 2008

Mira Turns 3


On Saturday, Mira turned three years old. I couldn't help from having a small pity party for her as I was putting her to bed for the night. I thought about what Mira and our family have gone through over the past three years and what the future holds for her. It has been an emotional roller coaster to say the least, one that I would hope and pray that no one ever has to endure. What really made me most sad is that Mira didn't even realize that it is her birthday, which is a time of great happiness for most kids - getting presents, blowing out candles, eating lots of your favorite cake, and running off a sugar high for the next three hours. I can't help sometimes to ponder various scenarios with Mira, wondering what life would be like if she hadn't been so affected by all of this and how different things would be if she just were able to be aware of people and engage with her surroundings. I don't know how to explain it. It's watching other three year old kids running around in the park and desperately wishing the same will happen for your child. It's a constant craving as a parent to want to have a connection with your child somehow. It's a hope that your child recognizes you in some fashion, whether through a smile, laugh, or a simple visual gesture. It's just wanting your child to be happy and constantly questioning whether or not they truly are.

8 comments:

JSmith5780 said...

Happy Birthday Mira! I am hoping and praying for a SF year to come.

Reagan Leigh said...

I totally know how you feel. It's a horrible feeling and I have it often. Birthdays, much like milestones, just become depressing reminders of how catastrophic these seizures are on our little ones. As always Mira and your family remains in my prayers...

Tara & Aidan (IS board) said...

Happy 3rd Birthday Mira!!!

Sophie's Story by Elaine said...

Happy 3rd birthday, Mira!

I am at a loss for words. My heart goes out to you and your family.

Erin KC and family said...

Hi Marc--

I lurk around your blog, but I wanted to tell you how touched I was by your birthday post for Mira.
You work so hard to make the best of all the challenges, to build a great life for your family. I am so honored and amazed to be your friend and to watch you and Sarah rise to meet all these challenges with such grace. I know that birthdays are bittersweet. I deeply respect the feelings that you shared. I want you to know that we love you and are so glad to be a part of your lives!

Kimberly said...

Happy Birthday my sweet Miss Mira! It has been a great three years baby! I love you and your family!! Hugs to all. Marc and Sarah, you are the best parents those three could have asked for! Keep doing what you do best and we will all be there to help.
Kim

Princess Abigail said...

I understand these feelings and feel the same ones frequently about Abigail... a kind of nostalgic feeling about what her life could have been without the 'stuff'. Thank goodness the joy they bring is greater than the occasional sadness drift ... and your little cherub is certainly a cracker! What a winner of a smile!
Alison
of the Bernard Bunch

labonte4 said...

Happy 3rd Mira. What a beautiful girl! I know you guys will find success again this year....and be SF again.