Saturday, June 11, 2016
Early Evening Seizures
The last few days, Mira has been tiring out early, ending up in bed for a 'nap' before she actually goes to bed. For the third evening in a row, she has erupted into a huge tonic-clonic in her bed. She makes that horrible grunting sound (as she did this evening, right when I sat down to start this post) which sends a chill up my spine. I rushed in there to find her having a big seizure. We haven't been seeing any TCs during the day, just a lot of random startles and tension in her arms/legs, but these early evening seizures in her bed are disconcerting. Yesterday, she had a couple in a row - tonight it was just one so far, but very intense.
We have not heard anything back on the biopsy, but then again, it has only been about 4 weeks. We will probably wait another few weeks before we reach out to her neurologist. As with all of the testing Mira has endured over the years, we typically don't expect to hear anything back within a reasonable amount of time, unless they discovered something, which of course, has not happened yet. We end up following up at her next appointment to go over it.