A Good Weekend

The weekend started off so well, with the Jayhawks winning Thursday evening, only to get trounced by UCLA last night. My interest in the tournament is now dwindling fast. I did have a hearty chuckle when North Carolina lost today - poor Roy. Time to head for the golf course.

Mira had a pretty good weekend overall. Saturday, Eli, Mira, and I went to the Plaza for a wet and windy stroll and spent quite a bit of time at the park afterwards. Mira had a couple of 'partial' tonics (if there is such a thing - they are seizures that start off looking like they are going to be really awful, but then she rebounds really quickly, after about 5-10 seconds) and had a few head drops, but no full out tonic seizures yesterday or today.

Today she started taking Pyridoxal 5 Phosphate (P5P) which is just the coenzyme form of Pyridoxine (B6). She will take 100mg daily, which is a 'routine' therapeutic dosage typically used in treating epilepsy. Some studies go up to 500-600mg daily. Other studies show that kids who don't respond to typical B6 treatment often respond to P5P treatment, because the body cannot break down pyridoxine in its 'raw' form. P5P is just the active form of B6, thus eliminating the step required by the body to break it down in the liver for absorption. It also means that it is quadruple the cost of over the counter B6.