Saturday, October 13, 2007

A Mixed Week

Mira has had some difficulty this week, especially Thursday and Friday. We started seeing a bunch of seizures earlier in the week, which took a toll on her. We saw even more on Wednesday which prompted a call to neurology, since we were afraid that she was going to have another episode similar to last week. They gave us a prescription for clonazepam (Klonopin) wafers, to use as an additional 'temporary' medication to help her get through bad days. Mira had tried Klonopin a long time ago, without success, but now she will use it on occasion if she has frequent episodes or multiple seizures. She can still use the Diastat (Ativan) to stop the clusters, but not in conjunction with the Klonopin - the two have to be used independently.

Mira has also been vomiting some this week. She had an episode on Thursday night and again this morning, as I was posting this, ironically. It might be that she is becoming more ketotic, which tends to mark an increase in nausea, vomiting, and/or diarrhea. Sorry, Mira's diet topics are typically not a conversation to have over dinner.

Speaking of ketosis, we are still working with insurance to move forward on the Ketocal, but have been having difficulty pushing the paperwork through thus far. It is moving along, though.

1 comment:

jotcr2 said...

Wow. I won't bother to tell you that it sounds tough. Our girl has been SF for 10 months. Mira is very cute. I hope the diet works out.