Mira has been up and down this weekend - periods of quiet enjoyment, mixed with moments of irritability. Mira's seizures have been consistent as well - she is averaging about 1-2 intense tonic-clonics a day, with her usual myoclonics scattered throughout the day. Overall, a typical weekend for Mira. The weather has been decent - little to no rain, but very hot and muggy, especially today where it reached into the upper 80's. Summer is finally rearing its head.
As many of you know, I have been fighting and advocating for some sort of CBD legislation here in Kansas for awhile now. So I watched the Dateline special this evening, most of which centered around three families and their struggles with epilepsy in Virginia. Much of the profile and backstory with Charlotte Figi, I am very familiar with, from the CNN documentaries that aired last year. The CBD-only legislation that has surfaced over the past 18 months with many states, is encouraging to see, because at least it is starting to move in the right direction.
After watching the special, it only highlights how far other states have to go. Kansas of course, elects to operate in a 1940's model, bowing to the continuous pharma-backed propaganda and outright lies perpetrated by puppets like Dr. Eric Voth, who was literally laughed out of California when he tried to spew his string of verbal diarrhea to the masses. Kansas politics and its absurd legislative tactics are truly laughable. The same shortsightedness, the same hypocritical, right-wing religious fear-mongering, over and over again, year after year. It conjures up images of a recently ostracized drunken clown, sitting in the gutter, gnawing on a cheeseburger he just found in the street. Sad and pathetic.
Case in point, as the state continued to struggle with trying to close a $400 million deficit in triple-overtime this weekend, a bill sat directly under their noses (HB2049) that had the potential to create a constant revenue stream, yet the Senate President was too stubborn to let the senate vote on it, sending it instead to die in committee after the House had just overwhelmingly passed it. Ironically, the 'answer' to fixing the deficit was to yet again, raise taxes on the middle and working class - the same approach that got them into this mess in the first place. It's mind-numbing. Thanks to the likes of Senator Susan Wagle, Senator Mary Pilcher-Cook, and of course, the court jester himself, our Governor, the state's uninterrupted run at being the punchline to every national political blooper highlight show, remains intact.
Insanity is doing the same thing over and over and expecting a different outcome - Kansas is a shining example of why this ancient adage still holds true.