Tuesday, September 29, 2015

More Heavy Seizures

Mira has been in a fairly decent mood the past few days, but she has been having a ton of seizures. She is still having countless myoclonics, especially in the mornings, and she is averaging 1-2 intense tonic-clonics every day this week. She has been having good days at school - some brief fussy spells, but for the most part, she is happy during the day. Her teacher has been reporting that she isn't having a whole lot of seizure activity at school, but we continue to see so many at home. She was very vocal and happy in her bed after school, but as soon as we got her in her chair, she started having continuous, strong myoclonics, that immediately progressed into a an intense tonic-clonic. I couldn't get her tray out from under her quick enough and the seizure had 'locked' her against the tray for the frist 5 or 10 seconds. I had to tilt her back in her chair, which took some of the weight off of the tray, and was able to unlock it and remove it, all during the first part of the seizure. Mira cannot catch a break these days and is getting zero relief from these constant seizures.

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