Wednesday, November 11, 2015
3 is a Terrible Number
Mira could not last more than three seconds with her toy today. She was up early and full of energy this morning, but having so many myoclonics before I even got her out of her bed. One right after the next, for a solid 15 minutes, Mira endured so many seizures, all before 6:45am. I waited for another 15 minutes or so after they stopped, right up until the time she started to get fussy and really wanted her toy. I put it on her board and within three seconds, she burst into another string of myoclonics. I went through this scenario, after another 15-20 minute wait, and again, she erupted into another strong myoclonic within three seconds of having her toy in front of her. That was the end the toy for the day. To top it all off, at school, Mira had three intense full-blown tonic-clonic seizures, all within about 90 minutes. She had the first two were about 15 minutes apart, then she had another about an hour later. Her teacher said she was completely out of it the rest of the day. Three seconds; three myoclonic episodes; three tonic-clonics. Mira was so spent at the end of the day, she just fell asleep in her chair. She is exhausted and overwhelmed with seizures this week.