Thursday, November 19, 2015
The Balancing Act
Mira continues to have a consistent flow of seizure activity. She averaged 1-2 tonic-clonics every day this week and had hundreds of myoclonics, even without her toy near her. The irony is, with her weaning the Vimpat (she is almost 3/4 of the way through it) while she seems to be having more seizures, she is much more engaged at school. Her teacher said she is making great eye contact and is very focused at times. I have abandoned all hope that we will ever find a positive balance with medications, seizures, and a consistent level of engagement. It is obvious that with less pharmaceuticals in her system, she is more alert, but we are definitely seeing an increase in seizure activity, at least over this past week. She had a nice bath this evening and didn't complain once, but afterward, really wanted to go to bed.