Monday, April 20, 2015

Less Congestion + Less Sleepy

Mira was somewhat improved today - she woke up with a little less congestion and was in a decent mood this morning, despite having a bunch of myoclonics with her toy. She mustered through a bottle for breakfast, even with all of the sinus pressure and congestion. Being upright in her chair seemed to help some.

She had a positive day at school, with a minimal amount of sinus issues and ironically, no seizures. She didn't have any head drops or any seizure activity this afternoon either, which is great. Mira had some quality time with her toy on a couple of occasions - before and after dinner. She had quite the appetite, drinking three bottles in a row.

We are trying some a new protein powder mix with her and she drank it right down, so I guess she approves. It's gluten free, soy free, and dairy free, yet has the same amount of protein and calories that she needs to maintain her weight.

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