Saturday, April 11, 2015

Trigger Toy

Mira has been having a ton of seizures today. All of them have happened the same exact way too, from interacting with her toy. Mira has days where she will play with her toy for 45 minutes straight, without so much as a twitch. Other days, like today, playing with her toy will cause her to erupt into a huge tonic-clonic seizure.

She ended up having three really intense seizures, each one within a minute or so of sitting in front of her toy. She started each one by having some small myoclonics, then a more intense one that unfolds into a much bigger episode. Each time, we immediately take the toy away, but by then, it's too late. She is overwhelmed and the seizure is already taken over. We had hoped that this morning was just a fluke with her toy, but it turned out to be what set her off every time.

It's terrible because her toy is the one thing she loves to play with and unfortunately, it's been the trigger. Despite the seizures, she has been in a pleasant mood most of the day. We were able to get out to the park and into the swing, but Mira was very lethargic and not really enjoying it much.

No comments: