Sunday, January 11, 2015

Crabby Day

Mira has been pretty irritable today. She woke up crabby and quickly tired of being in her chair after only 10 minutes. Again, another day of off and on irritability, where nothing sustains her attention long enough to keep her from crying. She did have good stretch in her chair this afternoon for awhile, but that was the high point of the day. She had a few myoclonic clusters this morning, but we haven't seen much seizure activity all day, ironically.

Sometimes it feels like a vicious cycle of transfers with Mira. From her chair to her bed, back and forth so many times during the day, because she so quickly swings the fuss-o-meter from one end of the spectrum to the other. It's exhausting for everyone, Mira included, to try and maintain a constant state for more than 15 minutes at a time it seems.

Unfortunately, it was too cold and rainy to get outside again. Today would have been a good swing day for Mira. Hopefully, getting back to school tomorrow will get Mira out of her Sunday blues.

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