Thursday, January 15, 2015

The Crabby Train Rolls On, Then Stops in the Station for the Evening

Mira has been having repeat days of overwhelming irritability. This week has been pretty consistent with her - never happy for more than 15-20 minutes, doing one thing, or being in one place. This trend has been going on for weeks and we are now considering upping her Vimpat dosage. Her temperament has been consistently poor at school, at home, and everywhere in between. Then, out of the blue, she had a great moment tonight.

Mira had almost an entire hour before bedtime tonight, where she was happy and engaged with her toy - full of energy and only a few brief seizures. We then were able to race around the house in her chair for awhile, which she really seemed to enjoy. After Mira was in bed, she was interacting with me by scratching her right hand on the side of her bed, smiling and laughing when I started scratching in return. We alternated this scratching back and forth for a good 10 minutes, with Mira smiling every time I did after her. It was such an awesome moment to be able to communicate with her on some level, just with some simple sounds and texture.

Afterward, she sat up in her bed, folded herself over (her favorite sleeping position) closed her eyes, and quietly went to sleep.

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