Wednesday, May 6, 2015

Night Owl

Mira has been staying up late this week - each night is later than the one before. Tonight she was up another hour and a half past her usual bedtime once again. Her stamina for staying up late, playing with her toy, or just chilling out in her chair, has escalated this week. She hasn't been sleeping in late in the morning, nor sneaking in power naps at school, so we aren't sure why. Most of the time, she has been in a decent mood, so no harm in letting her stay up late. Tonight, she even enjoyed a bath, without so much as a whimper.

On another positive note, we heard back from GeneDx today and they have worked out coverage with our insurance carrier to cover Mira's comprehensive epilepsy panel. This would be step one in being able to keep our current neurologist. Of course if the panel comes up empty and we are still without an official genetic diagnosis, we will need to find a new neurologist in clinic, as our current one is drastically reducing his patient load because of a change in his role within the hospital.

Results from the panel are supposed to be back in 4-6 weeks.

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