Saturday, December 12, 2015

The End of an Era

All good things must come to an end. I was happy to give an update earlier with Mira not having any seizures for almost a week, mainly due to her not having her toy. As the week progressed, Mira became increasingly irritable, until we reached a breaking point and ultimately, gave it back to her. Much to my amazement, she didn't have a seizure the first two times we returned it to her. That was short-lived. The past several times we have re-introduced the toy, her myoclonics became more pronounced with each exposure, and in turn, prompted us to limit her time with it, the moment we felt things were becoming too intense for her. Everything came to a head this morning, when we gave her the toy and she instantly erupted into a huge seizure. Following the seizure, she was completely off for the rest of the day - clammy hands and feet, sweating, and tons of drooling. Unfortunately, the pattern has become so consistent and established over the past 6 months, that she can no longer play with the toy at all. We are forced to retire it permanently. I cannot believe we have reached the point in this journey where we have to keep something from her that has brought her so much entertainment and joy for the past 8+ years.

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