Saturday, January 2, 2016
Great Start for 2016
Mira has been doing very well to start off the year. She hasn't had a big TC (tonic-clonic) since last Tuesday, when she was having these awkward movements in the morning, that eventually led into 2 involved TCs. For the past three days however, she has only has the same periodic 'lightning' jerks - I don't know what else to call them. They don't look like her typical myoclonics (that she has had for years), as her body doesn't shift to the right and her head doesn't drop at all. They only last a second and they are very random. She is having maybe a dozen or so a day that we actually witness. She stopped having those morning myoclonics, which is awesome and hope it continues! Overall, since we have eliminated the toy and have (most likely) reached a plateau with the fluoxetine, we are going to sit back and see where this takes us. So far, she has gone from having 1-2 TCs a day to 1-2 a week, which is a substantial improvement. Her mood (knock on wood) has improved somewhat as well - I had posted earlier that she is having more good days than bad, which is still holding steady. Today in fact, she happily sat through lunch at one of our favorite restaurants, with the entire family, not making a peep. Go Mira!